Speaker Presentations

Marita Andersson Grönlund


Associate professor, senior university lecturer, senior consultant in Pediatric Ophthalmology, and Head of the Dept. of Pediatric Ophthalmology, The Queen Silvia Children’s Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.

Jan Magnus Becker
Senior Consultant in Plastic Surgery, Skane University Hospital, Malmö, Sweden 2000 and onwards. Specialist in Plastic Surgery- University Hospital MAS, Malmö, Sweden 1998-2000. Degree of Doctor of Philosophy in Medicine– certified December 1998 on "Cleft lip and palate; Clinical & Methodological Studies". Associated Professor in Plastic Surgery, University of Lund – certified April 2006. Dr Becker has over 100 presentations in national and international meetings, 36 scientific articles in plastic surgery, mostly in the era of cleft treatment. He is director of the Swedish national quality register in cleft treatment since 2009.

Maggie Bellew

BA (Hons) MSc, PhD, CPychol, AFBPsS. Dr Bellew is a Consultant Clinical Psychologist, working at the Leeds Teaching Hospitals NHS Trust and also at the Spire Leeds Hospital.  She qualified in 1991, and has Chartered Clinical Psychologist status and also Chartered Health Psychologist status.  She is an Associate Fellow of the British Psychological Society and is registered with the Health Professions Council.  

At the Leeds Teaching Hospitals, Dr Bellew and her team provide a comprehensive, highly specialist psychological assessment and intervention service for patients under the care of Plastic, Reconstructive & Hand Surgery; Orthopaedics; the Leeds Major Trauma Service; and the Emergency Departments at both St James’s and the Leeds General Infirmary.  They see patients across the life span from birth to old age, who have a variety of difficulties including those arising from congenital anomalies, disease and traumatic injury.  

Dr Bellew is research active with a number of publications.  She is a Senior Consultant in the Department of Clinical and Health Psychology at LTHT, where she heads up the Adult Psychology Services (which in addition to the clinical areas described above, covers Oncology, Cardiology, Renal, HIV, CF, the Prosthetic Rehabilitation Service the Chronic Pain Service, RMU, Staff Counselling, and a Generic service).

Kristin Billaud Feragen

Cand. Psychol., PhD, post doc. Clinical psychologist, Oslo Cleft Lip and Palate Team, Norway.  Cand.Psychol. (1999) and PhD (2009) from the Faculty of Social Sciences, Department of Psychology, University of Oslo. Research interests lie in the area of cleft lip and palate, more specifically to the psychosocial impact of appearance-related challenges when growing up with a visible difference, and corresponding risk and protective factors. Clinical experience mainly with children and young people with a cleft (assessments of psychosocial and emotional adjustment, interventions, and counselling for parents and local health professionals).

Jonathan Britto

Jonathan Britto is Consultant Plastic and Craniofacial surgeon at Great Ormond Street Hospital for Children in London. Particular interests include surgical access and reconstruction for the care of children’s craniofacial cancers, and orbitopalpebral surgery for congenital difference. He is a medical advisor for the charity Facial Palsy UK, and prior to a career move to consultancy at Great Ormond Street, held a consultant post in adult head and neck reconstruction and the restoration of adult facial paralysis.

Current clinical and research interests include the management of hypertelorism, orbital hypoplasia in craniofacial dysostosis syndromes, and the molecular biology of FGFR2-syndromes in a Crouzon mouse model.

Tron A. Darvann

Research Engineer at the 3D Craniofacial Image Research Laboratory in Copenhagen, Denmark (jointly sponsored by School of Dentistry, University of Copenhagen; Centre of Head and Orthopaedics, Copenhagen University Hospital Rigshospitalet; and Department of Mathematics and Computer Science, Technical University of Denmark (DTU)). He has a MSc degree in astrophysics from Oslo, Norway (1991), and a PhD from DTU (2003). Scientific focus areas are statistical shape analysis, non-rigid image registration and quantification of craniofacial asymmetry. He has supervised more than 40 pre- and postgraduate students, authored/co-authored more than 100 peer-reviewed publications and is reviewer for 3 technical and 3 medical journals.     

Scott Deacon

He is Clinical Director and the Lead Consultant Orthodontist for South West Cleft Service UK and also the Clinical Project Lead for the CRANE Database at Royal College of Surgeons, England based in London, UK. This is a national register of all babies born with cleft lip and cleft palate in England and Wales, which assesses the quality of treatment these children receive in the specialist centres.

He has published in international journals on topics ranging from toothbrushes to outcomes in cleft treatment and co-authored chapters for textbooks on cleft care. He is currently an Editor for the Oral Health Group of the Cochrane Collaboration. He has also undertaken media work on the radio and TV relating to cleft care in the UK.

Måns Eeg-Olofsson

M.D., Ph.D. Senior ENT surgeon with subspeciality in Otosurgery and Audiology. Research field concerning bone conduction physiology and implantable bone conduction hearing devices.

Françoise Firmin

Dr Françoise Firmin started her residency in Plastic Surgery at the Hôpital Foch with Paul Tessier. She then completed a one year fellowship with Professor Converse in New York. After visiting Burt Brent, she started to perform ear reconstruction regularly. In 2001, she was President of the « Société Française de Chirurgie Plastique Reconstructive et Esthétique «   and in 2007 President of the European Association of Plastic Surgeons. In private practice at « Clinique Bizet » in Paris, she welcomes and teaches many fellows and observers. This last year, she gave the first «  Daniel Marchac Lecture «  at the 2014 EURAPS meeting and hosted in Paris  the first meeting of the ISAR Society ( International Society of auricular reconstruction).

Hans Friede

Graduated from Dental School in Malmö, Sweden in 1963. Orthodontic training in Gothenburg, Sweden followed by a Cleft research associate position in 1970 at Center for Craniofacial Anomalies in Chicago. Began studies of facial growth in bilateral CLP, resulting in 1977 in a PhD degree from University of Gothenburg. Got a position as associate professor, which in 1995 was changed to full professor and head of Orthodontic department. Retired in 2002 as emeritus professor and moved to the US. Has during the last 40 years treated and/ or studied patients with CLP or other CF anomalies resulting in more than 65 papers in refereed journals including a book chapter on facial grow and recently, two chapters in textbooks on treatment of CLP patients.

Piotr Fudalej

Piotr Fudalej studied dentistry at the Warsaw Medical University and biology at University of Warsaw. He completed a postgraduate orthodontic program at the University of Washington, Seattle, U.S. He was on the Warsaw cleft team at the Institute of Mother and Child, Warsaw, Poland from 2004 to 2013. His scientific interests include an assessment of the effectiveness of treatment of cleft lip and palate and evaluation of early secondary alveolar bone grafting. Both research lines were followed in collaboration with Radboud University Medical Center, Nijmegen and University of Manchester. He authored or co-authored more than 60 scientific articles. He received the 2010 Samuel Berkowitz Long-Term Outcomes Study Award for the best long-term outcomes study published in 2009 in the Cleft Palate Craniofacial Journal.

Peter Hammond

I originally trained in mathematics and computer science at Oxford University and Imperial College. Previously, I worked in pure mathematics, artificial intelligence and for the past fifteen years I have focused on computational biology with applications primarily in craniofacial dysmorphism but recently on cell-ECM interactions related to scarring in heart tissue following myocardial. I am particularly interested in multi-disciplinary research that develops mathematical and computational techniques and applies them to biomedical problems. Current interests include facial phenotype-genotype correlations and the effects of copy number variation and prenatal alcohol exposure on facial form.

Ylva Jugård

Ophthalmologist. Specialist in ophthalmology since 2014, working at the Department of Ophthalmology at Södra Älvsborg Hospital, Borås

Thomas Anthony Kelley

2012-2013: University of Oxford: MBA
2004-2010: University of Manchester: MD, BSc (Hons)

February 2015 – present: Head of Europe Office, ICHOM: Supervise the development of standard sets, Supervise the implementation of sets across Europe, Promote ICHOM to European payers, providers and governments.
April 2014 – January 2015: Standardization Director, ICHOM: Supervise the development of Standard Sets of outcomes out of the US and UK office.
July 2013-April 2014: Project Leader, ICHOM: Developed CAD, Cataract, Parkinson’s Disease and Cleft Lip Standard Sets.
August 2010 – August 2012: Hospital Doctor, Oxford University Hospitals: Worked in acute medicine, general surgery, plastic surgery, primary care, emergency medicine and orthopaedics.

Annelise Küseler

Certified orthodontist from the University of Aarhus, Denmark 1997, PhD 2004 with the title: “Aspects of temporomandibular joint involvement in patients with juvenile idiopathic arthritis”. Assistant professor at the department of orthodontics, Aarhus University, at the department of Maxillofacial Surgery, Aarhus University Hospital and at the Cleft Palate Institute, Aarhus, Denmark. Main research areas are cleft lip palate and TMJ in JIA patients. Member of the Scancleft working group as well as the European studygroup for TMJ arthritis in JIA patients.

Anette Lohmander

Graduated as speech and language pathologist at Karolinska Institute, Stockholm, Sweden 1982. PhD 1996, associate professor 2003, and professor 2007 at University of Gothenburg. Received a position as professor in speech and language pathology at Karolinska Institute 2008. More than 25 years experience of clinical work and research in patients with cleft palate at Sahlgrenska University Hospital, Gothenburg and since 2009 affiliated to the Craniofacial Center at Karolinska University Hospital, Stockholm. Involved in Eurocran, Scandcleft, Eurocleftnet, TOPS and ICHOM cleft palate for improved and evidence based clinical care. Publications and main research area include investigation of speech production and early speech development in children with cleft palate related to primary surgery and hearing.

Thomas Maal 

Coordinator of the 3D Lab Nijmegen at the department of Oral- and Maxillofacial surgery of the Radboud University medical centre (head of department: prof. Dr. S.J. Bergé). Furthermore he works as a 3D imaging specialist at the department of Oral and Maxillofacial Surgery of the Academic Medical Centre Amsterdam. 

In 2006 he started working as the first technical engineer at the 3D project of the department of oral and maxillofacial surgery (Radboud University Medical Centre Nijmegen). A 3D Lab was setup in order to facilitate the implementation of technical innovations in 3D imaging into daily clinical practice. During his work he developed a passion for research and clinical work in oral and maxillofacial surgery. In 2012 he finalized his PhD on the use of 3D technology in Oral and Maxillofacial surgery and continued working as coordinator of the 3D Lab Nijmegen and at department of Oral and Maxillofacial surgery of the Academic Medical Centre, Amsterdam.

Marianne van Maliepaard

Executive functioning in Children with Syndromic or Complex Craniosynostosis’ oral presentation; ESCFS Gotheborg Sweden.

2012 ‘Treatment and Neuropsychological Research in Children with Facial Abnormalities’, oral presentation about neurocognitive diagnostics in children with syndromic craniosynostosis researchmeeting Pediatric Psychology; Erasmus MC Rotterdam the Netherlands.

2011 ‘Structural Brain Areas and Neurocognitive Functioning in Syndromic Craniosynostosis’ oral presentation;  ‘Cognitive, Behavioral and Emotional Functioning in Children with Syndromic Craniosynostosis’ oral presentation; ‘Communication Skills in Children with Syndromic or Complex Craniosynostosis’ Poster presentation; ISCFA, International Craniofacial Congress; Zambia 2011.

2011‘Communication Skills in Children with Syndromic or Complex Craniosynostosis’ oral presentation; Cognitive, Behavioral and Emotional Functioning in Children with Syndromic Craniosynostosis’ poster presentation; Symposium Pediatrische Psychologie Nederland, Radboud University Nijmegen, the Netherlands:

2010 ’Syndromic or Complex Craniosynostosis and Neurocognitive Functioning’ oral presentation;

ESCFS, ErasmusMC Rotterdam, the Netherlands.

2009 ‘Quality of Life in Children with Syndromic or Complex Craniosynostosis’ oral presentation;  2009 ISCFA, International Craniofacial Congress; Oxford Great-Britain.

2009 ‘Quality of Life in Children with Syndromic or Complex Craniosynostosis’ oral presentation; NVSCA Annual Meeting/Congress; St. Elisabeth hospital; Tilburg the Netherlands.

2014- today Psychologist at Erasmus MC-Sophia Children’s Hospital, University Medical Centre Rotterdam, Department of Child and Adolescent Psychiatry/Psychology, The Netherlands. Involved in Neuropsychological research follow-up in children 2 years after admission to intensive care.

2008 - today  PhD: “The neurocognitive functioning and behavior of children aged six to twelve years with a syndromic or complex craniosynostosis“. A research project on the Erasmus MC-Sophia Children’s Hospital, University Medical Center Rotterdam, Department of Plastic, Reconstructive Surgery and Hand Surgery, The Netherlands. Erasmus MC-Sophia Children’s Hospital, University Medical Center Rotterdam, Department of Child and Adolescent Psychiatry/Psychology, The Netherlands.

Irene Mathijssen

December 2011 Professor

March 2005 Plastic surgeon, Erasmus MC

January 2005–April 2005 Fellowship Paris, dr. E. Arnaud

October 2000 Doctorate “Craniosynostosis Clinical and fundamental aspects”

Costanza Meazzini

Acquired a Specialty in Orthodontics and Dentofacial Orthopedics and a Master in Medical Sciences (1995,Harvard University). Completed a Cranio-Facial and  Surgical Orthodontics Fellowship (University of Illinois at Chicago,1997). Orthodontic consultant for cranio-facial anomalies the CLP Center, San Paolo Hospital, Milano and for the Department of Maxillo Facial Surgery, San Gerardo Hospital, Monza . Adjunct  Professor in Pre-surgical Orthodontics and Orthodontics for Craniofacial Anomalies, h for the residency in Maxillofacial Surgery and Orthodontics, University of Milano. Past President of the Italian Society for Cleft Lip and Palate (SILPS).

Felicity Mehendale

Felicity Mehendale is a Consultant Plastic, Reconstructive and Cleft Surgeon at the Royal Hospital for Sick Children, Edinburgh and an Honorary Clinical Senior Lecturer at the University of Edinburgh. She has led the multidisciplinary teams that provide the East and North of Scotland Cleft Lip and Palate Service for 11 years.

She trained as a doctor in Bombay University and then worked as a general surgeon in India, completing her residency at the Tata Memorial Cancer Hospital, before training as a plastic surgeon in the UK, in Plymouth and Cambridge. She then carried out research into embryonic wound healing in the department of Developmental Biology and Anatomy, University College London.  She was a cleft clinical and research fellow at the North Thames Cleft Service, Great Ormond Street Hospital and the Institute of Child Health, London.

Her research interests include cleft clinical outcome studies, identification of predictive factors for cleft outcomes, 3D imaging of the face, development of the face and mechanisms of clefting, velopharyngeal function and anatomy, Pierre Robin Sequence, upper airway obstruction and obstructive sleep apnoea in clefts and cognitive outcomes. She is also very involved with public engagement with medical science.  

She had been awarded research funding from the Wellcome Trust, the Royal College of Surgeons and the Craniofacial Society of Great Britain and Ireland.

She is hosting the International Cleft Congress, in Edinburgh, in 2021.

Peter A Mossey

Professor of Craniofacial Development and Consultant in Orthodontics, University of Dundee Dental School.  Currently Associate Dean for Research University of Dundee Dental School and Director, World Health Organisation (WHO) Collaborating Centre for Craniofacial anomalies. Convenor of research group in Cleft Care Scotland and Leader for the Craniofacial Anomalies theme in the WHO Global Burden of Disease (GBD) Birth Defects Initiative arising from the recommendations of the 63rd World Health Assembly in May 2010. Appointed honorary secretary of the IADR Global Oral Health Inequalities Research Network in August 2012 and Chair of the international Task Force on epidemiology, aetiology and prevention of cleft lip and palate in June 2013.

Jyotsna Murthy

Dr. Jyotsna Murthy, prof. of Department  of Plastic Surgery at Sri Ramachandra University, a prestigious tertiary care center in Southern India(www.srmc.edu)  She is at present holding position Head of Plastic Surgeon and director of the Cleft & Craniofacial Center(www.cleftcare.org)   She was an honorary secretary of Indian Society of Cleft Lip, Palate and Craniofacial Anomalies(2004-2010) and executive member of Association of Plastic Surgeons of India(2005-08).   She is president of International Confederation of Cleft Lip and Palate and Related Craniofacial Anomalies and will be hosting International Cleft Congress 2017 at Chennai, India.

Claes Möller

Professor MD, PhD
Dep of Audiology Örebro Univ Hospital 701 85 Örebro Sweden
MD 1979, PhD 1989 in Otorhinolaryngology. Associate professor 1992,
Professor 1997 in Audiology at Gothenburg University.
Professor in Medical Disability research, and Audiology Örebro University  2007-

Supervised PhD-thesis
8 to successful completion, at present supervision of 7 PhD-students.

Scientific merits
Publications in international journals, book capters and proceedings. 270 published abstracts, more than 400 national and international presentations

Kirsten Mølsted

Kirsten Mølsted DDS, Specialist in Orthodontics, PhD. Head of Copenhagen Cleft Palate Centre since 1997. Kirsten Mølsted received her DDS from the University of Copenhagen in 1977.

In 1986 she became Specialist in Orthodontics. In 1987 she got her PhD: Craniofacial Morphology in Children with Unilateral Cleft Lip and Palate.

She has been a member of the European Cleft Palate Research Group (Eurocleft) since 1987. She has been involved in the Biomed II Clinical Network group, the Eurocran project, and the Scandcleft project. The major focus in her research has been related to clinical outcome.

Erik Neovius

Erik Neovius (EN) is since 1997 specialist in otorhinolaryngology and since 1999 specialist in plastic surgery at Karolinska University Hospital, Stockholm. Since 1999 EN has been sub specialized in cleft lip and palate and other craniofacial surgery. He was heading the trauma section at the Department of Reconstructive Plastic Surgery between1998-2006 and thereafter EN is leading the craniofacial section. His clinical focus is primary and secondary reconstructions and bone repair in congenital defects including cleft patients but also secondary reconstructions in trauma and tumour patients. He is also leading Stockholm Craniofacial Center where specialists in plastic surgery, neurosurgery, otorhinolaryngology, ophthalmology, maxillofacial surgery and radiology work together. His research is focused on bone reconstruction in collaboration with the Department of Material Chemistry, Ångström laboratory, Uppsala University and the Department of Neurosurgery, Karolinska University Hospital.

Marie Odersjö

CDT, anaplastologist. Graduated 1989 in dental technology in Gothenburg, Sweden.Spent six years after graduation as an all-round dental technician, focusing on crown and bridgework and combined prosthetics.  

1996 - anaplastologist at the Dept. of Otolaryngology at Sahlgrenska University Hospital, Gothenburg. 1996-2000 working mainly with osseointegrated epistheses and since 2000 also working with ocular prostheses.

Special interests are craniofacial epistheses, ocular prostheses, and especially ocular prostheses for children and children born with microphthalmia and anophthalmia.

Sólveig Óskarsdóttir

Sólveig Óskarsdóttir graduated as Medical Doctor from University of Iceland. Specialist in Paediatrics. PhD 2005. ”22q11-Deletion Syndrome. A Clinical and Epidemiological Study”. Has been working at the Queen Silvia Children’s Hospital/Sahlgrenska Hospital in Gothenburg, Sweden since 1984 and concurrently working as a senior consultant in Pediatrics at the Department of Medicine and Rheumatology and Immunology at the Queen Silvia Children’s Hospital. Leader of the 22q11-multidisciplinary specialist team in Gothenburg since1997. Has published several papers about the 22q11-Deletion Syndrome. Board-and founding member of the 22q11-patient organisation since year 2000. Founding member of the 22q11 Society. Boardmember of the Sweden's doctor's association for pirmary immunodeficiency.

Martin Persson

Martin Persson is a psychologist and a senior research fellow at the Centre of Appearance Research, University of the West of England. One of his main research interests is in working with individuals with visible differences in relation to psychosocial and public health aspects.  He has worked in over 30 national and international projects such as Cleft Care UK and Face Value. Martin has a Ph.D. in Medicine, Masters Degrees in Public Health and Psychology and his research has been published in academic peer-review journals and presented at international conferences. He has over the last 10 years facilitated a variety of workshops and symposiums in his areas of specialties in Europe, the United States, South America, Asia and Australia.

Maria Ransjö

Maria Ransjö, DDS, PhD.  Senior Consultant in Orthodontics. Professor and Chairperson of the Department of Orthodontics, Institute of Odontology, Sahlgrenska Academy at University of Gothenburg since 2012.  She graduated from the School of Dentistry at Umeå University, received her PhD in Oral Cell Biology 1988, appointed Assoc. Professor in Oral Cell Biology 1992, completed the Orthodontic post graduate program 1995. Appointed Senior Lecturer in Orthodontics and Cell Biology at Umeå University 1997. Acting Senior Orthodontist in the Cleft Lip Palate team Umeå 2001-2011. Publications and main research area include signaling systems in bone cells, biological interactions with bone replacement biomaterials and clinical orthodontics

Bertil Romanus

MD, Ph.D, Ass. Prof, Ortopaedic Department, Sahlgrens University Hospital Göteborg, Sweden

Born in Lund Sweden, 1941

1968 MD Göteborg

1974 Orthopaedic specialist, 1974 PhD Thesis

1980 - Associate professor in Orthopedics at the University of Göteborg,

2008 – Part time senior consultant in Orthopedics

1982 – 2004 Head of Pediatric Orthopedic Service at, Sahlgren University hospital, Göteborg

1986 – Member of EPOS, European Paediatric Orthopaedic Society

1995 – 2006 President of the Swedish Paediatric Orthopaedic Society

Presented a number of Papers at international conferences

Published 35 articles in international scientific journals

Nichola Rumsey

Nichola is Professor of Appearance Research at UWE and is Co-Director of the Centre for Appearance Research (CAR). Following the completion of her PhD “Psychological Problems Associated with Facial Disfigurement” in 1983, Nichola has published widely and has built an international reputation for her research in this field.  She has attracted over £7m funding to support research on appearance. She has been involved in the reorganisation of cleft care in the UK and played a leading role in efforts to promote the inclusion of psychologists as key members of the newly configured UK cleft teams.  She leads the psychosocial strand of research in a recently established UK wide cleft birth cohort study and is leading an ACPA Global Task Force currently engaged in promoting the use of patient centred outcome measures in cleft.   

George K.B. Sándor

MD, DDS, PhD, Dr. Habil. George Sándor is Professor of Tissue Engineering and Oral and Maxillofacial Surgery at the University of Oulu, and formerly Professor of Tissue Engineering at Regea Institute for Regenerative Medicine, at Tampere University, Finland being funded through the Finnish Distinguished Professor Program (FiDiPro) by the Finnish Granting Agency, TEKES. The research focuses of Professor Sándor include Tissue Engineering of Bone using Cell Therapy with adipose derived stem cells, hyperbaric oxygen therapy as it pertains to angiogenesis and bone healing in compromised wounds, along with the reconstruction of congenital, traumatic and post ablative defects with navigation, computer assisted planning of reconstructions. Professor Sándor has published over 200 scientific papers, written 29 book chapters, published 2 books and given over 100 international invited lectures.

Gunvor Semb

I graduated as an orthodontist from the University of Oslo in1974 and joined the Oslo Cleft Team. Since then I have worked exclusively with patients born with clefts. I have joint appointments at the University of Manchester, UK and the University of Oslo, Norway and have participated in a series of international outcome studies and several long-term multinational projects. I am the coordinator of three randomised clinical trials on primary surgery for patients born with UCLP (The Scandcleft trials) initiated in 1997 and am a co-coordinator of an international multicentre randomised trial of the timing of cleft closure in patients born with cleft palate. I am the Lead for the Global Team Task Force “Beyond Eurocleft” launched in 2012.

Mats Sjöström

Mats Sjöström DDS, PhD.  Consultant in Oral and Maxillofacial Surgery at the Umeå University Hospital. Senior Lecturer at the Department of Oral and Maxillofacial Surgery, Umeå University. Clinical activity mainly in maxillofacial surgery with a focus on orthognathic surgery and reconstructive surgery in cleft children and adults as well as reconstructive surgery in tumour patients. Research focused on clinical follow up studies in the above mentioned fields.

Brian Sommerlad

Honorary Consultant Plastic Surgeon, Great Ormond Street Hospital for Children, London & St Andrew’s Centre for Plastic Surgery, Chelmsford UK. Plastic Surgeon, Ospedale Pediatrico Bambino Gesu, Rome. Previous President of the Craniofacial Society of Great Britain & Ireland. Previous President of the British Association of Plastic Surgeons. Previous Hunterian Professor of the Royal College of Surgeons. Previous Member of the UK Government Clinical Standards Advisory Group (CSAG) on Cleft Lip & Palate and the CSAG Cleft Implementation Group.

Honorary Fellow of the Royal College of Surgeons of Edinburgh. Honorary Fellow of the Royal College of Speech & Language Therapy. Chairman of charity CLEFT

Nicola Marie Stock

Nicola is a Research Fellow in Psychology for the Centre for Appearance Research, based at the University of the West of England in the UK.  She holds a first class honours degree in Psychology and Mental Health, and two Masters degrees in Research Methods and Health Psychology.  

Nicola specialises in the psychological impact of cleft lip/palate.  Her recent projects include the psychological impact of cleft on fathers, children with additional conditions and adults born with a cleft.  Nicola is currently leading the Psychology strand of The Cleft Collective, the largest cleft research programme in the world to date.  She is studying for a PhD by publication in the field of cleft, due for completion in summer 2015.

Karin Strömbäck

Consultant, PhD

Head of the section of Otosurgery

ENT- Department, , University Hospital Uppsala, Sweden

Jean-Claude Talmant

Doctor, Nantes France.

Delaire Resident 1967/71. Fellowship with Paul Tessier 71/73. Plastic and Reconstructive surgery Consultant at the Nantes University Hospital 73/89. Head of the “Pays de la Loire Cleft lip and Palate Center”, Nantes. France.

His ongoing research has stressed the essential role of nasal ventilation on facial growth.

Between 1990 and 2014, he has written 30 papers on Cleft Lip and Palate Treatment. Invited as Faculty member or lecturer in International Meeting: In Belgium, England, France, Ireland, Italy, Norway, Scotland, Spain, Sweden, Swiss, Australia, Canada, India, Oman, Singapour, South Africa, South Korea, Uruguay, USA, and Chili.

Past President of the French Facial Cleft Association (AFFF).

Andreas Thor

Andreas Thor, DDS from Karolinska Institute in 1987 and Consultant in Oral & Maxillofacial Surgery in 1996. After work in at Karolinska and Stockholm Söder Hospital, he joined the Dep. of Surgical Sciences, OMFS at Uppsala Univ. Hospital in 2001. PhD (Biomaterial Science) in 2006, Univ. of Gothenburg. In 2011 appointed Assoc prof. and in 2013 reader of OMFS at Uppsala University. Presently  part clinical work and research in OMFS, leading a research group for regenerative and reconstructive OMFS surgery. His clinical focus has lately been in participating in the reconstructive team around Head and Neck malignancies at the University Hospital in Uppsala.

Anders Tjellström, M.D., Ph.D., D.Sc.hc

Medical education at the University of Göteborg, SWEDEN. Former Head of the Implant Unit at the ENT department,  Sahlgrenska University Hospital. In 1972 he joined professor Brånemark. Ph.D. - thesis on preformed middle ear ossicles. In 1977 he performed the first surgery for the bone anchored hearing aid - BAHA - at the Department of Otolaryngology, Sahlgrenska University Hospital, Göteborg. In 2009 honorary doctor at Chalmers University of Technology.

The concept of implant retained craniofacial prostheses was introduced in 1979. Co-worker with anaplastologist Kerstin Bergström. Lecturing at numerous international meetings and has been teaching  at a large number of workshops. He has published more than 150 scientific papers.

Alexandra Ţopa

MD, MSc, Department of Clinical Genetics, Sahlgrenska University Hospital

Medical license 2002: “Carol Davila” National Medical School in Bucharest, Romania

Specialist degree Paediatrics 2008: “Claude Bernard” Medical School in Lyon, France

Master of Science Genetics 2009: “René Descartes” Medical School in Paris, France

Specialist degree Genetics 2012: The National Board of Health and Welfare, Sweden.

Activity: full-time clinician at the Department of Clinical Genetics at Sahlgrenska University Hospital, Gothenburg - Diagnostic and genetic counselling in patients with developmental delay and/or congenital malformation syndromes consultant in research projects with the departments of Ophthalmology and Plastic Surgery lectures for medical students and medical personnel on genetic diseases and investigation workflow

Andrea Waylen

My research interests include dento-facial appearance and quality of life (particularly related to cleft lip and palate and head and neck cancer). I am a member of the steering group for the Cleft Care UK study and lead the psychosocial strand of this research project; similarly, I sit on the steering group committee for the Head and Neck 5000 study based in Bristol and lead the psychosocial research therein. I also have an interest in the effects of relationships and communication on health outcomes and health-related behaviour (particularly potentially risky behaviours such as tobacco and alcohol use and sexual behaviour). I also lead the Professional and Personal Development theme on the undergraduate curriculum at Bristol Dental School.

Karen Wong, MD MSc FRCSC

Karen Wong is a pediatric plastic surgeon-scientist at the Hospital for Sick Children in Toronto, Canada.  She is an Associate Professor with the Division of Plastic and Reconstructive Surgery and the Department of Surgery at the University of Toronto.  Her clinical focus is in the management of cleft lip and/or palate and pediatric microsurgery.  
Her research focus is in health services research, specifically in the evaluation of patient-reported outcomes.  She is the co-creator of the CLEFT-Q together with Dr. Anne Klassen, and is completing a Ph.D. in Health Research Methodology at McMaster University.

Pamela Åsten

Graduated as speech and language pathologist in 1989 at Karolinska Institute, Stockholm, Sweden. She moved to Norway after 10 years of clinical practice at the habilitation services in Stockholm. Currently affiliated at the TAKO-centre in Oslo and leader of the oral motor team. The TAKO-centre has an outpatient clinic for people with rare congenital conditions referred for oral health problems and orofacial dysfunction. Pamela is involved in education at the faculties of dentistry in Norway. She is a member of the national craniofacial team at Oslo University Hospital from 2003. The main research interest and publications are orofacial functions and speech related to craniofacial dysostosis.